68 % curvature of the Spine
Brenna Garica 6/9/2014
Our recent visit to the spine clinic at Shriners Hospital was heartbreaking. Due to her scoliosis, it is recommended that she have a spinal fusion. Because of the previous issue with adhesions intertwined in her intestines, I am not liking the idea of surgery. But there is a downside to not having the surgery as well and that is if I wait too long, it becomes a higher risk procedure. The longer the time the spine gets to stiffen in the new incorrect position the more complicated the procedure becomes. I need to get some feedback from parents of children similar to Arianna and those that are verbal so they can tell me themselves how it was, what it felt like and such for the post op. Also, I know there will be appointments that I will need to get her to and I want to make every trip as smooth as possible. Those paratransit buses are ear-piercingly LOUD because the lift equipment rattles. I hope to have the van for Arianna by the time she has her surgery.
Arianna's first Dr's Appointment while attending her new school location.
Brenna Garcia 9/6/2014
On 9/2/14 Arianna had to attend a CCS required GI Appointment at Sutter Health in Sacramento, which included the social worker, Nurse and Nutritionist. This appointment is required to continue to receive services such as her mickey buttons, formula and equipment for her g-Tube feedings. The appointment was at 9am, I scheduled paratransit the previous Thursday 8/28/14. Our pick up and drop off time was 8:15am p.u. and 11am ret. So as soon as I sent my boys off to school I began getting myself ready, from 6:00 to 7:30 is all about the kiddos. Arianna’s school has been having trouble with their phones they didn’t get the message That she didn’t need to get picked up on this day, I had to take time out of my 30mins.to address the school bus and paratransit showed up 10mins early. Sending away the school bus to make way for the paratransit bus I made a mad dash for Arianna passed her to the driver so he could start tying her down, grabbed what I needed for her appointment and boarded the bus. I paid round trip as I always do, I purchase the tickets online so I can have a receipt. As I was passing the driver ( I like our driver today he’s courteous and always upbeat) the tickets I tripped over the wheel well, realizing I still had flip-flops, “I forgot my sneakers dammit!” as I mumble to myself the driver says “It’s okay take it easy.” I don’t like not wearing my sneakers, it’s a safety issue while out with Arianna, besides pushing 170 lbs, chair and child combined isn’t’ a good idea, for me anyway. Now that I’ve caught my breath, we arrive at our destination, get inside the office and check in. Informed to go into the room I set my coffee on the table, soon after spilling it with our planner bag. The perfect topping to my morning, as I began cleaning it up, the Nutritionist felt bad for me and set out on the hunt for more coffee. The appointment went smoothly just crossing all the t’, dotting all the I’s and checking all the boxes for continuation of services. We go right to 11:00, as I’m talking to the Dr., we just about had wrapped it up I get a call from paratransit dispatch “The driver’s been waiting, they’re outside.”, “Okay, I’m just about done with the appointment, I had an 11:00 pick up.” I said. “What, well I can tell him to wait 2 more minutes but that’s it.” Irritated with her I disconnected, asked the Dr. if there was anything else. She informed me about scheduling the appointment in 6 mos. with her and the New GI Dr. “I’ll have the nurse call you.” She said as I headed for the door. Apparently the driver was waiting for 10 minutes he had a 10:50 pickup for Arianna and I. Paratransit always does that. I’m supposed to give them 15 minutes before and after said pickup time. But if their late by 30 minutes or more I’m not supposed to say anything. After Arianna’s GI appointment we were dropped off at her school. I had planned to walk home afterward initially a good 45 min walk, but my dear friend Carol wouldn’t have that. It’s so nice to know wonderful people.
Para transit is good for what it is. On another occasion 8/4/14 our Shriners appointment was a disaster I had a 7am pickup and a 10am return time. Our appointment finished @ 9:45. I called at 10:07 they said he was there waiting, since I hadn’t been there they sent him to lunch “He’ll pick you up @10:45”. Make a long story short, It was a new driver, they initially went to the wrong place according to dispatch when I called @ 11:00 inquiring about our pick up. “Perhaps that is what happened with the 10:00 pick up before he was sent to lunch.” I stated. Ultimately we were picked up at Shriners at 11:20 that day.